This Article  • Full text  • PDF  • Send to a friend  • Save in My Folder  • Save to citation manager  • Permissions  Citing Articles  • Citation map  • Contact me when this article is cited  Related Content  • Related articles  • Similar articles in this journal  Topic Collections  • Rehabilitation Medicine  • Pediatrics, Other  • Alert me on articles by topic

The Unintended Consequences

Nancy Murphy, MD; Becky Christian, PhD, RN

Arch Pediatr Adolesc Med. 2007;161(10):930-932.

	Since this article does not have an abstract, we have provided the first 150 words of the full text and any section headings.

Approximately 5.6 million children in the United States have health conditions associated with moderate to severe limitations in self-care activities, and 1.5 million children are limited in their ability to walk, care for themselves, or participate in other activities.^1-4 Because there are differing definitions of disability and its severity, national estimates of prevalence vary. However, at least several million children in the United States will never be able to care for themselves. Historically, hospital or institutional care was the only option for these children, but as a result of sociopolitical and health care changes, pervasive nursing shortages, and scarce home care resources, most of the care of children with disabilities is now provided by their parents in their homes.⁵ Parents are shouldering more caregiving responsibilities that, because of technological advances and increased survival rates, have become increasingly complex and long-term.^5-6 National initiatives have . . . [Full Text of this Article]

THE EXPERIENCE OF CAREGIVING


UNINTENDED CONSEQUENCES
Caregiver Health and Well-being

Hospitalizations and Out-of-Home Placements

Financial Impacts

IMPLICATIONS

CONCLUSIONS

AUTHOR INFORMATION

RELATED ARTICLES

Being Specific About Being Special: Defining Children's Conditions and Special Health Care Needs
Matthew M. Davis and Jeffrey P. Brosco
Arch Pediatr Adolesc Med. 2007;161(10):1003-1005.
EXTRACT | FULL TEXT  

A Family-Centered, Community-Based System of Services for Children and Youth With Special Health Care Needs
James M. Perrin, Diane Romm, Sheila R. Bloom, Charles J. Homer, Karen A. Kuhlthau, Carl Cooley, Paula Duncan, Richard Roberts, Phyllis Sloyer, Nora Wells, and Paul Newacheck
Arch Pediatr Adolesc Med. 2007;161(10):933-936.
ABSTRACT | FULL TEXT  

A Tertiary Care–Primary Care Partnership Model for Medically Complex and Fragile Children and Youth With Special Health Care Needs
John B. Gordon, Holly H. Colby, Tera Bartelt, Debra Jablonski, Mary L. Krauthoefer, and Peter Havens
Arch Pediatr Adolesc Med. 2007;161(10):937-944.
ABSTRACT | FULL TEXT