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Need for Genetic Education for Type 1 Diabetes
Arch Pediatr Adolesc Med. 2003;157:935-936.
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| Since this article does not have an abstract, we have provided the first 150 words of the full text and any section headings. |
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We read with interest a recent article that appeared in the ARCHIVES regarding the ethics of predictive genetic screening for type 1 diabetes (T1D).1 Dr Ross nicely reviewed the status of newborn genetic screening for T1D, which is beginning to be offered at a statewide level in the United States. The primary purpose of newborn genetic screening is the identification of high-risk infants. Currently, more than 90% of parents consent. Babies at high risk (~2%-10%) are recruited into natural history studies. The American Diabetes Association Position Statement indicates that genetic screening for T1D outside the context of research is not warranted.2 Dr Ross addressed the ethics of newborn genetic screening for a nonpreventable disorder, such as T1D. Her concerns included the psychosocial risks of predictive testing, the false assurance for children not considered to be at high risk, and proper informed consent.
We share Dr Ross' concerns, and describe here . . . [Full Text of this Article]
Janice S. Dorman, PhD
Department of Epidemiology
Graduate School of Public Health
University of Pittsburgh
3512 Fifth Ave
Pittsburgh, PA 15213
(e-mail: jansdorman@aol.com)
Denise Charron-Prochownik, PhD;
Linda Siminerio, PhD;
Chris Ryan, PhD;
Cathy Poole, RN;
Dorothy Becker, MD;
Massimo Trucco, MD
Pittsburgh
RELATED ARTICLE
Need for Genetic Education for Type 1 Diabetes—Reply
Lainie F. Ross
Arch Pediatr Adolesc Med. 2003;157(9):936.
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