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Grief-Love
Contradictions in the Lives of Fathers of Children With Disabilities
Arch Pediatr Adolesc Med. 2002;156:643.
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| Since this article does not have an abstract, we have provided the first 150 words of the full text and any section headings. |
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A CONVOCATION OF FATHERS, united in their calling to parent daughters
and sons who live with disabilities, convenes each year as the summer solstice
approaches. Under the auspices of the Washington State Fathers Network (a
nonprofit organization held together, barely, with bake sale brio) these 80-or-so
men care for children of all sorts, from infants to teens to young adults,
of diverse colors and creeds, with autism, cerebral palsy, or chromosomal
rearrangements, with diseases afflicting the lungs, bowels, heart, or brain.
Some of these fathers asked for this job, adopting their child with special
needs; most did not. All gathered here, though, strive to meet the challenge.
This gathering of grief-love roils with emotional contradictions, the
warp and the woof of these men's lives. As they talk with one another, exchanging
stories, feelings, and points of view, common themes emerge. The unpredictable
course of their children's conditions, marked by Odyssean . . . [Full Text of this Article]
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