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Hydrocephalus: A Guide for Patients, Families, and Friends
by Chuck Toporek and Kellie Robinson, 355 pp, $19.95, ISBN 1-56592-410-X, Sebastopol, Calif, O'Reilly & Associates Inc, 1999.
Arch Pediatr Adolesc Med. 2000;154:965.
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This book is written from the personal experience of Kellie Robinson, who has hydrocephalus, and her husband, Chuck Toporek; their story is related in the introduction. Their strong quest for knowledge about hydrocephalus resulted in extensive research to produce a book written in simple lay terms for patients and families affected by hydrocephalus. It offers medical information in terms that are understandable, practical matters that make life less stressful, and emotional support with stories of patients and their experiences.
There are 11 chapters: "What is Hydrocephalus?" "Getting the Diagnosis," "Selecting a Neurosurgeon," "Treating Hydrocephalus," "Hospitalization and Recovery," "Shunt Revisions," "Side Effects," "Findings Support," "School," "Insurance," and "The Well-Informed Patient." The appendix includes 5 sections: (1) a list of neurosurgeons who specialize in treatment of hydrocephalus, (2) a list of medical libraries and journals, (3) suggested reading, (4) Internet services, and (5) a glossary of terms, followed by an up-to-date important . . . [Full Text of this Article]
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