This Article  • Full text  • PDF  • Send to a friend  • Save in My Folder  • Save to citation manager  • Permissions  Citing Articles  • Citation map  • Citing articles on HighWire  • Citing articles on Web of Science (7)  • Contact me when this article is cited  Related Content  • Similar articles in this journal  Topic Collections  • Medical Practice  • Medical Practice, Other  • Pediatrics, Other  • Primary Care/ Family Medicine  • Psychiatry  • Autism  • Asthma  • Immunology  • Allergy  • Alert me on articles by topic  Social Bookmarking   What's this?

National Survey of Children's Health

Allison E. Brachlow, MD; Kirsten K. Ness, PhD; Melissa L. McPheeters, PhD, MPH; James G. Gurney, PhD

Arch Pediatr Adolesc Med. 2007;161(4):399-405.

Objective  To assess the extent to which parents of children with autism compared with parents of children with asthma or other special health care needs report receiving primary care for their child consistent with the American Academy of Pediatrics medical home model.

Design  Population-based cross-sectional study.

Setting  National Survey for Children's Health 2003-2004 telephone interview.

Participants  Parents of 495 children with autism, parents of 6716 children with asthma, and parents of 11 403 children with other special health care needs without asthma.

Main Exposures  Autism and other special health care needs including asthma.

Main Outcome Measures  Medical home score and components of care, as follows: personal provider and preventive; family-centered, compassionate, and culturally appropriate; accessible; comprehensive; and coordinated.

Results  The odds of parents reporting care consistent with that in a medical home were less likely for children with autism (odds ratio, 0.45; 95% confidence interval, 0.30-0.66) and more likely for children with asthma (odds ratio, 1.17; 95% confidence interval, 1.06-1.30) compared with children with other special health care needs (1 [reference]). These differences persisted even after controlling for condition severity, personal characteristics, and insurance status. Specific components of a medical home less prevalent among children with autism than among children with other special health care needs included family-centered, comprehensive, and coordinated care.

Conclusion  Although we could not evaluate the reasons why, a large percentage of children with autism do not receive primary care consistent with that in a medical home.

Author Affiliations: Department of Pediatrics, University of Minnesota, Minneapolis (Dr Brachlow); Department of Epidemiology and Cancer Control, St Jude Children's Research Hospital, Memphis, Tenn (Dr Ness); and Department of Pediatrics, University of Michigan, Ann Arbor (Drs McPheeters and Gurney).

CiteULike    Connotea    Del.icio.us    Digg    Reddit    Technorati    Twitter     What's this?

THIS ARTICLE HAS BEEN CITED BY OTHER ARTICLES

Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder Among Children in the US, 2007
Kogan et al.
Pediatrics 2009;124:1395-1403.
ABSTRACT | FULL TEXT  

Medical Homes for Children With Autism: A Physician Survey
Golnik et al.
Pediatrics 2009;123:966-971.
ABSTRACT | FULL TEXT  

A National Profile of the Health Care Experiences and Family Impact of Autism Spectrum Disorder Among Children in the United States, 2005-2006
Kogan et al.
Pediatrics 2008;122:e1149-e1158.
ABSTRACT | FULL TEXT  

Looking Ahead to Even More Discoveries in Autism Spectrum Disorder While Addressing Current Needs
Schonfeld and Manning-Courtney
Arch Pediatr Adolesc Med 2007;161:412-413.
FULL TEXT