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  Vol. 156 No. 4, April 2002 TABLE OF CONTENTS
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Measuring Quality of Life in Children With Attention-deficit/Hyperactivity Disorder and Their Families

Development and Evaluation of a New Tool

Jeanne M. Landgraf, MA; Michael Rich, MD, MPH; Leonard Rappaport, MS, MD

Arch Pediatr Adolesc Med. 2002;156:384-391.

Objective  To psychometrically evaluate a new parent-completed questionnaire that measures the effect of attention-deficit/hyperactivity disorder (ADHD) on the everyday well-being of children and their families.

Setting  Using a mail-out/mail-back method, the sample was drawn from the registry of an outpatient developmental and behavioral program of a large tertiary pediatric hospital. All children received medication for ADHD.

Participants  Responses were received for 81 children of whom 60 (74%) were boys. An even split of questionnaires was returned for children with ADHD primarily inattentive (50%) and ADHD combined (50%). The condition of 70 patients (86%) had been diagnosed for 1 year or longer; 69 patients (89%) reported receiving medication.

Main Outcome Measure  The ADHD Impact Module, HealthAct, Boston, Mass, developed with input from families, measures the effect of the disorder on the child's emotional–social well-being (Child Scale, 8 items) and the family (Home Scale, 10 items).

Results  The scales exceeded standard criteria for item convergent and discriminant validity. No floor effects and minimal (2%) ceiling effects were observed. Cronbach {alpha} was 0.88 and 0.93 (Child and Home Scales), respectively. Raw scale scores are transformed on a 0 through 100 continuum; a higher score indicates more favorable findings. Statistically significant differences (P<.000) were observed for ADHD inattentive vs ADHD combined on both scales (Child, 65.26 vs 48.86; Home, 72.79 vs 51.26). Better "success at home" scores were reported by parents of ADHD inattentive children (Child Scale, 62.12 vs 47.36, P = .00; Home Scale, 70.58 vs 47.01, P = .000).

Conclusions  The ADHD Impact Module meets stringent psychometric standards. Further validation is required, but current evidence suggests it is a promising new questionnaire.


From HealthAct (Ms Landgraf), the Divisions of Adolescent/Young Adult Medicine (Dr Rich) and General Pediatrics (Dr Rappaport), Children's Hospital, and the Department of Pediatrics, Harvard Medical School (Drs Rich and Rappaport), Boston, Mass.



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THIS ARTICLE HAS BEEN CITED BY OTHER ARTICLES

Worse Quality of Life for Children With Newly Diagnosed Attention-Deficit/Hyperactivity Disorder, Compared With Asthmatic and Healthy Children
Escobar et al.
Pediatrics 2005;116:e364-e369.
ABSTRACT | FULL TEXT  

Health-Related Quality of Life in Children and Adolescents Who Have a Diagnosis of Attention-Deficit/Hyperactivity Disorder
Klassen et al.
Pediatrics 2004;114:e541-e547.
ABSTRACT | FULL TEXT  

Coping, Commitment, and Attitude: Quantifying the Everyday Burden of Enuresis on Children and Their Families
Landgraf et al.
Pediatrics 2004;113:334-344.
ABSTRACT | FULL TEXT  





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