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Measuring Quality of Life in Children With Attention-deficit/Hyperactivity Disorder and Their Families
Development and Evaluation of a New Tool
Jeanne M. Landgraf, MA;
Michael Rich, MD, MPH;
Leonard Rappaport, MS, MD
Arch Pediatr Adolesc Med. 2002;156:384-391.
Objective To psychometrically evaluate a new parent-completed questionnaire that
measures the effect of attention-deficit/hyperactivity disorder (ADHD) on
the everyday well-being of children and their families.
Setting Using a mail-out/mail-back method, the sample was drawn from the registry
of an outpatient developmental and behavioral program of a large tertiary
pediatric hospital. All children received medication for ADHD.
Participants Responses were received for 81 children of whom 60 (74%) were boys.
An even split of questionnaires was returned for children with ADHD primarily
inattentive (50%) and ADHD combined (50%). The condition of 70 patients (86%)
had been diagnosed for 1 year or longer; 69 patients (89%) reported receiving
medication.
Main Outcome Measure The ADHD Impact Module, HealthAct, Boston, Mass, developed with input
from families, measures the effect of the disorder on the child's emotionalsocial
well-being (Child Scale, 8 items) and the family (Home Scale, 10 items).
Results The scales exceeded standard criteria for item convergent and discriminant
validity. No floor effects and minimal (2%) ceiling effects were observed.
Cronbach was 0.88 and 0.93 (Child and Home Scales), respectively.
Raw scale scores are transformed on a 0 through 100 continuum; a higher score
indicates more favorable findings. Statistically significant differences (P<.000) were observed for ADHD inattentive vs ADHD combined
on both scales (Child, 65.26 vs 48.86; Home, 72.79 vs 51.26). Better "success
at home" scores were reported by parents of ADHD inattentive children (Child
Scale, 62.12 vs 47.36, P = .00; Home Scale, 70.58
vs 47.01, P = .000).
Conclusions The ADHD Impact Module meets stringent psychometric standards. Further
validation is required, but current evidence suggests it is a promising new
questionnaire.
From HealthAct (Ms Landgraf), the Divisions of Adolescent/Young Adult
Medicine (Dr Rich) and General Pediatrics (Dr Rappaport), Children's Hospital,
and the Department of Pediatrics, Harvard Medical School (Drs Rich and Rappaport),
Boston, Mass.
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